Noah had 3 appts. at the Cleveland Clinic on Tuesday. They all went really well. He saw his nutritionist, he weighs 64 lbs 13ozs. and is 4ft. 3in tall. He lost a little bit since last time but, if you remember they said he was "fat" (that still makes me laugh) so, it was good that he lost a little. He lost his love handles. We have to go back in 3 months to make sure he isn't losing anymore weight.
Next up was the pulmonogist his doctor was very pleased by the way he sounded and wants us to schedule a CT scan of lungs to make sure his lungs aren't any worse before his next appt. in three months. I really don't think his lungs will be any worse because he hasn't been sick in over a year. Oh well...we'll see.
The last appointment was with his gastrologist and she said Noah looked much better this time. He wasn't a chunky monkey this time. She wants to see him again in 6 months.
The one thing I never realized about the Cleveland Clinic is how the bathrooms are not very handicap accessiable. Scott is usually able to go with us and is able to sit with Noah when I need to use the restroom. We went by ourselves this time and I had to take him with me. It was impossiable. How sad is that? I need to find a phone number and call someone and tell them how I feel but, would it make a difference? Probally not.