Friday, October 28, 2016

Our ABR Journey Continues

Noah was 9 years old when we started our ABR journey. I remember wondering if this really was the journey we wanted or even should take. The picture above was Noah's first evaluation.
These two pictures were taken today. As you can see Noah doesn't need a whole lot of support now. We are glad we decided to take the road less traveled and start our ABR journey all those years ago. He is so close to sitting on his own. I'm now trying to find ways to get him to practice his balance.  We are looking forward to our next ABR training coming very soon.

Wednesday, October 19, 2016

Days Like These....

This last month has been... It's just been hard. I've felt beaten down with worry about Noah, dealing with insurance, trying to find a DME company that well work with me to get Noah Real Food and being dropped by our DME company we have dealt with for the last almost 14 years. Yes you read that right. they dropped us without warning because that don't want to mess with ordering Noah's supplies for us anymore. So it's been 3 weeks since I've gotten what I need for Noah. I waited a week and called an asked where our shipment was because it usually only takes 2 days. I was told that it got cancelled because I was trying to get the Real Food Blends through them and they didn't want to deal with that. I asked to talk to a manager and I'm still waiting for that phone call....
I'm still in the process of getting all of Noah's supplies through another DME company. That means getting all his doctors to send scripts for everything we usually order. I just hope I get everything we need soon before we run out.  I jsut got the word that the new company can't get the Real Food Blends for me either. Insurance will pay for it, I just don't get it. With Noah sick again, it just adds to all the stress. I'm just at my breaking point. I need something to give. I just to curl up in a ball and cry.... Life isn't suppose to be this hard. I need some time away where I can relax and not think about all this crap.  Does anyone have a place on the beach I can use? HAHA wouldn't that be nice......
When I look at Noah and I see that sweet smile, it makes all worth it though.
I also couldn't do it without Scott. He's my rock. 

Sunday, October 16, 2016

Cancer Sucks!!!

Saying goodbye......

 Please click the link above for a tribute to one of our ABR trainers Fehim.


One of our trainers from ABR lost his battle with cancer. Fehim always had a smile on his face and truly loved the kids he worked with. He rejoiced with us with every inchstone in Noah's ABR journey.  Because in the special needs world we count inchstones not milestones. Fehim you will never be forgotten. The world isn't the same without you. Rest in Peace... Until we meet again....

Friday, October 7, 2016

Minerva Monster Day

Scott enjoyed sharing his love of Bigfoot with Noah. Scott has always said its not what I can't do with my son, it's what I can.

Saturday, October 1, 2016

Noah's Guardians

On Thursday Sept. 22nd. we became Noah's guardian's. We were just glad that Noah was home from the hospital and we didn't have to leave him in Cleveland. Thank you Scott for sticking by me through it all. We make a pretty good team.