Saturday, September 15, 2018

Strut Your Mutt


Noah and fun Strutting is Mutt at the Richland County Fairgrounds today. Noah found a tie for Boris. Now they are ready for the game together. I was very impressed with Boris today, there was a lot of dogs and he was very excited to see all them but he didn't bark.
Dale, Boris' trainer was very appreciative and happy that we stopped by to see him. Dale has a Facebook page Pound to Service Dog, go check it out.
  
Noah also won one of their raffles. Too bad he isn't old enough to enjoy it.  Time for some wine tasting ; )

Tuesday, September 11, 2018

Surgery On the Horizon


 
Yesterday Noah had an appointment with his ENT. Only half of Noah's electrodes in his cochlear implant are working. That might explain why Noah has been taking his "ear" off. It must not be sounding right to him. Maybe it hurts? Who knows...` The Cochlear Implant team feel that it has gone bad because of Noah banging his head on his headrest. Something that he does when he gets stressed out or anxious. Noah has been on anxiety medicine since May and it has done wonders for him. Boris has also played a big part in keeping Noah calm during his day and when he goes to his many appointments. With that being said it is time to replace his implant. The surgery will take place as soon as it can be scheduled. 

Saturday, September 8, 2018

Help Us Help Noah


 
Noah saw his pulmonologist on Friday. She was very pleased with the way Noah's lungs sound. She feels the changes we have made in the last few months have been doing its job. We also talked about what to do to keep Noah healthy through the fall and winter. Noah was diagnosed with rhinovirus when he last in the hospital. With that being said, what is the next few months going to be like? It seems like the germs are ramped up already this year. We need to keep Noah away from germs as best we can and we are asking you to help us. It wouldn't be fair to Noah to completely put him in a bubble and not get out of the house to do things he loves to do. Here is where you can help: if you see us  at church, a sporting event or anywhere else enjoying life, please don't hesitate to say hi to Noah but please don't touch him. If you aren't feeling well please refrain from stopping by or getting too close to Noah. Help Us Help Noah

Monday, August 20, 2018

Noah Physical


Noah had a great check up with his primary doctor. He was very impressed with Noah. He asked me if we do physical therapy with Noah. I told him no we have been doing ABR therapy for over 10 years. He told me to keep doing what I'm doing and keep up the great work.
By the way Liam was the best helper at Uncle Noah's appointment today.

When we got home I called Noah's nutritionist to discuss Noah's food intake. We both agreed that it was time to just have Noah maintain his weight since his BMI is now on the good range. It's hard to believe we have finally made it to the other side with Noah's weight.

Friday, August 17, 2018

Today is the Day


Noah's appointment with his pulmonologist went really well. We got his breathing medications changed to inhalers. Noah doesn't do well with getting them through his nebulizer. The inhalers will be so much easier. Noah is also at his all time high of 77lbs 13.2oz.  
I have always wanted to take Noah to an Indians game after leaving the Cleveland Clinic. Today was the day!!!!  We decided to ride the train to the game. Noah was a bit concerned with the train ride. I kept telling him I promise we will get to the game.
We had a great time and Boris did wonderful.
Noah was so glad the Indians won 2-1.
-

Saturday, June 2, 2018

Being Called to Serve


A little less then a year ago, I was a being to called to go on a mission trip to Guatemala. Yes it was something I had always wanted to do but, I kept coming up with excuses why I couldn't go. It wasn't the right time, Noah needed me. The reasons kept coming but something kept telling me you need to go, this is your time. So the planning began.
The last couple of months I again second guessed the idea of me going. Especially when Noah was life flighted for the second time in 3 months and we were very close to losing him the second time. How could I leave him? I've prayed about it and again it feels like it's my time to do go. Noah is feeling the best he has in months and Scott is taking his last 3 vacation days and 2 flma days to stay home with Noah and we got some anxiety medicine for Noah in case he needs it while I'm gone. I also have been talking to Noah about me leaving with pictures.
In one day Mommy is leaving on an airplane.
Mommy is going a Mission trip to Guatemala. 



Mommy is hoping to meet the little guy we sponsor.
  
Noah I need you to do me a favor and take care of Daddy for me. Can you do that?  He answers with a big grin and a yes.

Please do me a huge favor and please keep our mission team in your prayers and by all means please pray that Noah does well while I'm gone.

Friday, April 20, 2018

We Have Never Been This Close



It has taken me four months to finally sit down and blog about Noah's last hospital stay. I have slowly made my way out of the worst funk I have ever been in. With Noah being life flighted in January, my Dad passing away and Noah getting so sick in April that we almost lost him. I had hit rock bottom and struggled to get out of bed every morning. I was determined to enjoy life again and have fun. I also wanted to give Noah a great summer enjoying life as well,like taking Noah to the ocean again. Thanks Kim and Karen for helping me make that happen.

With all that being said I'm finally at a better place. I'm not 100% but I'm a lot closer then I was. Hopefully I can get through this blog post without any tears.....




Scott and I got home from our get away around 3am last Monday morning. I scooped up Noah. He was awake in his bed sideways and had rubbed his forehead raw. He was off the wall agitated and restless. After over a hour of trying to calm him down, I put him back in bed and laid beside him to try and get some rest.
On Wednesday Morgan had to return to work after her maternity leave and Liam came to our house. Isn't he just dreamy?
On Thursday I came to realize that I could no longer take care of Noah on my own. I took him to the ER.
They decided Noah needed to be life flighted again to Cleveland. They sent a smaller helicopter then before and I weighed 5lbs too much to be able to ride with Noah. I started to panic....
I then called Deanie Kehres and she sent Todd to the hospital to ride with Noah. What a relief it was to know Todd would be there to be Noah's voice and mine.

Watching them take off was so hard.....
I have never seen Noah so sick.....


Even FaceTime with Liam didn't make him smile.
Noah was having keeping his stats up so he was put on 15 liters on high flow oxygen.
Saturday night was his worst night. We were sure we were going to lose him. It was so hard watching his little body fight to breath.
Please God don't take him yet.......
For most of Noah's hospital stay Noah wanted me to stand beside him and hold his hand. My body was so tired and sore from standing but how could I not?
On Sunday everyone came to see him, even Boris. When Emily put Boris on Noah's lap he gave Noah a kiss and then walked all over his bed and then laid down beside Noah and fell asleep. It wasn't long before Noah was asleep too. The first time in days.....
I had a talk with Noah and told him he was the pilot and it was up to him to fight and get stronger.
He definitely listened..... he weaned himself off of the high flow by pulling it off.
Emily brought Boris again on Monday.
Noah was well enough for Boris to sit in his lap in his chair.


On Tuesday Noah was doing his best to get rid of the oxygen all together.

During rounds on Wednesday, the doctors decided that Noah would rest and heal better at home.

Noah and I were able to get out of his room and go to lunch while we waited on Scott to get off of work so he could come pick us up. Noah also went shopping in the gift shop. He picked out a turtle for Liam.
 
Come on Boris we are out of here......