Tuesday, December 11, 2018

Keep Us in Your Prayers


The last several months Noah has had appointments for his cochlear implant. He has had many  test done and an MRI. His audiologist and ENT doctor has concluded that over half of his implant is not working.

Tomorrow we have to be at the Cleveland Clinic at 8:30a  and his surgery will be at 10am to replace his implant. We're hoping this will allow him to have better quality of hearing.
Please keep this little guy and us in your prayers tomorrow. Our whole family's anxiety is off the charts after almost losing him in April.

Saturday, September 15, 2018

Strut Your Mutt


Noah and fun Strutting is Mutt at the Richland County Fairgrounds today. Noah found a tie for Boris. Now they are ready for the game together. I was very impressed with Boris today, there was a lot of dogs and he was very excited to see all them but he didn't bark.
Dale, Boris' trainer was very appreciative and happy that we stopped by to see him. Dale has a Facebook page Pound to Service Dog, go check it out.
  
Noah also won one of their raffles. Too bad he isn't old enough to enjoy it.  Time for some wine tasting ; )

Tuesday, September 11, 2018

Surgery On the Horizon


 
Yesterday Noah had an appointment with his ENT. Only half of Noah's electrodes in his cochlear implant are working. That might explain why Noah has been taking his "ear" off. It must not be sounding right to him. Maybe it hurts? Who knows...` The Cochlear Implant team feel that it has gone bad because of Noah banging his head on his headrest. Something that he does when he gets stressed out or anxious. Noah has been on anxiety medicine since May and it has done wonders for him. Boris has also played a big part in keeping Noah calm during his day and when he goes to his many appointments. With that being said it is time to replace his implant. The surgery will take place as soon as it can be scheduled. 

Saturday, September 8, 2018

Help Us Help Noah


 
Noah saw his pulmonologist on Friday. She was very pleased with the way Noah's lungs sound. She feels the changes we have made in the last few months have been doing its job. We also talked about what to do to keep Noah healthy through the fall and winter. Noah was diagnosed with rhinovirus when he last in the hospital. With that being said, what is the next few months going to be like? It seems like the germs are ramped up already this year. We need to keep Noah away from germs as best we can and we are asking you to help us. It wouldn't be fair to Noah to completely put him in a bubble and not get out of the house to do things he loves to do. Here is where you can help: if you see us  at church, a sporting event or anywhere else enjoying life, please don't hesitate to say hi to Noah but please don't touch him. If you aren't feeling well please refrain from stopping by or getting too close to Noah. Help Us Help Noah

Monday, August 20, 2018

Noah Physical


Noah had a great check up with his primary doctor. He was very impressed with Noah. He asked me if we do physical therapy with Noah. I told him no we have been doing ABR therapy for over 10 years. He told me to keep doing what I'm doing and keep up the great work.
By the way Liam was the best helper at Uncle Noah's appointment today.

When we got home I called Noah's nutritionist to discuss Noah's food intake. We both agreed that it was time to just have Noah maintain his weight since his BMI is now on the good range. It's hard to believe we have finally made it to the other side with Noah's weight.

Friday, August 17, 2018

Today is the Day


Noah's appointment with his pulmonologist went really well. We got his breathing medications changed to inhalers. Noah doesn't do well with getting them through his nebulizer. The inhalers will be so much easier. Noah is also at his all time high of 77lbs 13.2oz.  
I have always wanted to take Noah to an Indians game after leaving the Cleveland Clinic. Today was the day!!!!  We decided to ride the train to the game. Noah was a bit concerned with the train ride. I kept telling him I promise we will get to the game.
We had a great time and Boris did wonderful.
Noah was so glad the Indians won 2-1.
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Tuesday, July 17, 2018

ABR Training July 2018

Our ABR training went really well. It was good to learn some new techniques and connect with some other families.
It was Boris' first ABR trip. He did a great job learning what he needed to do to help Noah.
Noah was more relaxed during training with Boris being there.


Noah is getting his legs wrapped. This will help with his tense muscles in his quads.