Thursday, August 25, 2016

Noah is Here Cheering You On

As another school year has started, I've seen all the first day of school pictures showing up on Facebook.Noah's classmates are starting a new chapter in their lives as well. Some are going off to college, starting jobs and maybe even joining a branch of service. Noah had is first day back at SHS. He enjoys going and I get a much needed break.
To all Noah's classmates near and far remember Noah is back home cheering you on. You can do anything you set your minds to.

Saturday, August 20, 2016

Our 6th Noah/Kehres Day

I look back on the last 6 months and realize how far Scott and I have come as a couple. A lot has to do with our opportunity to get out and spend some time together, just the two of us. It;s been a great six months going on little dates with each other again.
It was a beautiful day for a picnic lunch at the lake.
Noah had fun with his new friend Collin at the Kehres'. Scott and I are so blessed to have someone that we can trust to take care of Noah while we spend time together. Even though it still feels weird to not have Noah with us, it's something we look forward to every month.

Friday, August 12, 2016

Kleman's Barber Shop

 For as long as I can remember Noah has been going to Kleman's Barber Shop for a haircut. John and Jason never let us pay for a haircut. With all the extra medical stuff we have with Noah, it's nice to know we don't have to worry about paying for a haircut. It's the little things that mean so much to us. I love living in our little town of Shelby, it is filled with so many Earth Angels.

Friday, August 5, 2016

Take Me Out To the Ballgame

 When a person graduates from high school they usually use their graduation money to buy things for college. With Noah we wanted to do something with him that he would love to do, to celebrate him being such a great kid and an inspiration to so many.
We decided to take him to an Indians game. It's been 3years since we were able to go. Why do handicap seats have to be so expensive?
Noah loves watching the Indians play.
We got to watch Jim Thome get inducted into the Cleveland Indians Hall of Fame. His 13 year old daughter, Lila sang the national anthem. She did an amazing job. 

Noah received a Tribe Town towel. He had fun waving it when the Indians got a good hit or a run.

It was fun watching Noah enjoy watching the game.

The Indians beat Oakland 6-3!!!!
The fireworks after the game were amazing!!!
Thank you to everyone that helped us celebrate Noah. We couldn't travel this road without all of you. 

Wednesday, July 27, 2016

A Day With The Ohio State Buckeyes

Noah and Scott got to have a day with the Ohio State Men's Basketball team.
They both received a bag, shorts and a shirt to wear. Scott was so excited that he can finally fit into a 3x shirt. He says he didn't feel he looked real well in it yet but I thought he looked great. Keep up the great work sweetie. I love you.
Noah with David Bell.
Jae Sean Tate and Marc Loving
Trevor Thompson remembered Noah from last year. He has been following Noah on Instagram. He said that Noah has made a good impact on his life.

Noah and Scott had a great time playing basketball with Jimmy Jent.

Micah Potter saw Noah sitting off by himself and he came over to say hi.
Thanks Micah for taking the time to talk to Noah. It made his day.
Noah and Scott had a fun day playing basketball with the Ohio State Buckeyes but the best part of their day is when we were invited to come to a home game of our choice. Noah is so excited to see them play a game for the first time. Thanks A Kid Again for another fun day just being a kid.

Thursday, July 21, 2016

Sometimes Life Isn't So Fun

Most of my blogs post are of our fun journey with Noah. I try to focus on all the fun things we can do with Noah instead of the not so fun things. This last week was one of the not so fun things we have to deal with. Our many trips to the Cleveland Clinic for Noah's appointments.Most of the time they go really well and we get to hear how well he is doing. Last week started out having his teeth cleaned. He did pretty well after we gave him some Valium to help calm him down a bit. Although he did accidentally bite the dentist. Sorry Dr. Habercamp. Good news is he didn't have any cavities.
Our next appointment was with his gastroenterologist Dr. Kaplan. She was very pleased with Noah even though he lost 4 1/2 lbs. and his gtube looked beautiful. I take pride in how good it always looks. Now I just need to find a way to get him to gain some weight along with feeding him every 2 hours. He had some blood work done that showed his sugar at at 203. I had it redone on Tuesday after fasting for 12 hours and it was 110. I'm sure it was because the yogurt and applesauce he had before last weeks blood draw. It's always something with this little man.
Noah's last appointment was his pulminologist Dr. Royce. Noah has been pretty healthy for quite awhile but while sitting in this appointment we heard something that really shook us to our core. While looking at some xrays of Noah's lungs from January, Dr Royce pointed to Noah's lower left lobe and said here you can see Noah's chronic lung disease. That was the first time we heard someone say it  that way. We knew he has been dealing with Bronchiectasis (brong-ke-EK-ta-sis)  It's a condition in which damage to the airways causes them to widen and become flabby and scarred. Bronchiectasis can lead to serious health problems, such as respiratory failure, atelectasis (at-eh-LEK-tah-sis), and heart failure. It just really put Noah's health into perspective real quick. That's why over the years we have made sure Noah isn't around cigarette smoke and try to keep him away from germs. The idea of him getting really sick always scares me to death. I just hope we can keep Noah as healthy as we can. 
Now on to a much funner part of the post. On Saturday we helped out at the last Tim Hess Golf Scramble. We have really enjoyed helping out over the years.
Our job is to grill hotdogs for the guys and gals to have a snack while they are golfing.
This year the golf outing fell on our new Noah/Kehres day as well. Scott and I planned on going to a movie after we were done helping but dear Deanie was helping at the golf outing and took care of Noah as well. It felt odd to see Noah across the way and not be taking care of him but it also felt good that he was well taken care of while Scott and I were busy.
I'm so happy that we have found someone to take care of Noah while Scott and I reconnect with each other. He sure is well loved.
Speaking of reconnecting, Scott and I ran into our friend James Miller at the movie theater. He is a teacher in Taiwan, he is home for a visit. It was fun watching Tarzan with you.
Noah always go to sleep with a smile on his face after spending the day with the Kehres' 
Noah, I hope we can keep you happy and healthy for a very long time.

Friday, July 15, 2016

Monster Bash 2016

Monster Bash is a convention that is geared toward the classic monsters like Frankenstein, Wolfman, Creature from the Black Lagoon etc. We've been going to the Monster Bash for the last 17 years. We have met a lot of great friends over the years. In as much that Monster Bash has become a family reunion. The first person that always greets us when we come in is Eddie. He is a sweet kind hearted gentlemen. He is always so excited to be at Monster Bash.

Around everyone corner is a classic monster.
Jon and Mary are good friends of ours. The last couple of years they helped raise money to help out with Noah. They have helped purchase Noah's bed, several years ago they helped pay for ABR training  and last year they helped with Noah's ramp and our new porch. What a blessing they are.In case you want to check out their website. Femme Fatale Records
Monster Bash has a movie room where they show black and white movies, have guest that played in the movies and a comedian named Don Reese. Don is a good friend of ours as well. Some of you may remember when Don came to our very first fundraiser for Noah.
This year Mark Statler presented Don with some headgear.I know he looks goofy but it brought back memories of one of his jokes he used to use  years ago that included talking about wanting an antenna on his head. Now he has his antenna.
On Sunday morning the Bash offers church. Father Mike does an awesome job.
Another good friend Barb Heiss with the Robot Monster
Noah with Abbott and Costello.
The Sheaffer Family with Brian Nichols.
Scott and Greg Nicotero, of KNB EFX Group and second unit director of The Walking Dead. Greg wasn't a planned guest he just popped in to see Tom Sivini.
The Sheaffer Family with Sam Borowski. He is the producer of a Creature Feature: 60 Years of the Gillman It's a documentary about the Creature from the Black Lagoon. Noah is in it at the very end when he was 5 years old.
Sam and Matt ( the director) presenting the Creature Feature at Monster Bash.
Noah  bashed out in the hotel lobby on Sunday night.
A Bash tradition, dinner out with friends on Sunday night.

Bash goodbyes usually start on Sunday night and continue on Monday morning. Until next time.

Usually our first hello is also our last goodbye. Love ya Eddie, until next time.