Tuesday, February 28, 2017

Miracles & Magic

We had such a great time at the Miracles & Magic show. It was a way to raise money for A Kid Again. A Kid Again is an organization that provides family fun days every month for kids that have been granted a Wish through Make A Wish.
Noah had a great time in his front row seat. I promise he had his eyes open to watch the show. He can't seem to smile with his eyes open. goofy kid....

Thank you A Kid Again for another great Family Fun Day.

Wednesday, February 22, 2017

Happy 23rd. Birthday, Emily

Happy birthday, Emily!!! We are truly blessed that you are in our lives When you were little I always said if you were born first there would have been more then 2 years between you and Morgan. You always kept us on our toes and we wouldn't have wanted you any other way. You still have that spunk and fire in you and you are doing great things and I can't wait to see what God has in store for you this year. Continue to keep the love of Christ deep within in and you will go far.
I love you sweet girl and hope this is your best year yet.

Tuesday, February 14, 2017

What Does ABR Therapy Look LIke?

Do you sometimes wonder what ABR therapy looks like? Or find yourself wanting to ask what it is? Look no further..... the easiest way to explain it is a deep tissue message. When go to Canada it's training for me to learn new applications and techniques. Noah's job through it all is to sit or lay still. Sometimes that is easier said then done for him but, some days he even falls asleep. It usually takes us 2 1/2 to 3 hours to complete and we do it M-F.
If your interested in how it looks like, check out these videos: Password is Kirk

Monday, February 6, 2017

A Companion Dog for Noah

Noah got to meet his companion dog, Bindi on Friday. I think they are going to make a great pair.
It didn't take her long to lay down on Noah's lap.

She is such a sweet dog. She was really good with Noah and didn't mind his big movements when he went to pet her and that's with no training. She will be even better when she is  done with training.
She fits perfectly on his lap. I think Noah is saying that his dog is #1.

 Noah can't wait until we can take her places to show her off.
If you would like to help us out to off set the cost of her trainers fee, I set up a PayPal account under noahsmiracle@yahoo.com. or you can send it in the mail to 118 W. Main Shelby Ohio 44875. 
Thanks for always being one of Noah's Earth Angels.

Tuesday, January 31, 2017

ABR Training 2017

Noah loves getting out of the house even when he is traveling to Canada for ABR training. Although he would like it a lot better if we were able to bring his bed with us too, because he sure doesn't sleep well when he is in a hotel.

Our evaluation went really well. I do a blog post about it when I get and it via email.
The next six months we are going to be working a lot on his chest/lungs, head control and remapping his brain to realize his does have hands and feet.  The new techniques have brought amazing results in these areas. I'm really anxious to see what the next 6 months will bring.  
Noah and I were glad that Daddy/ Scott could join us this time. It had been 5 years that Scott has been able to go with us.
We spent our free day on Saturday to see the city. We found a really nice mall, of all things one of the stores in the mall was a Walmart. We were able to find a chair/stool that will aide in doing the therapy more comfortably for me there.
The best part of training this time was seeing our trainer Gavin. It has been five years since he has seen Noah. He had left ABR and has now returned. It was so good to seem him. When I look at the difference in Noah, I see how alert he looks and how much stronger he looks. In the 2017 picture Noah is looking at Gavin like yeah buddy where have you been. :) 

Saturday, January 28, 2017

Happy 19th. Birthday Noah!!!

Happy 19th birthday sweet Noah. It's hard to believe you are 19 years old today. Some days the road has seemed so long but other days it seems that years have flown by. You have taught me so much. I'm a lot stronger person then I ever thought possible. I'm  more passionate then I would have been without you in my life. Because of you I'm a better person. I'm so glad that God chose me to be your Mom. Do I want things easier for you?  Absolutely.... but I really wouldn't want you any other way and then you wouldn't be the Noah we know and love. You have made me who I am, just the way you are. I like who I am because of you.

I so love this quote....
God gives special needs children to regular parents, who choose to step up and be strong for their child!! That special child teaches you life lessons that you never could have anticipated, and throughout your journey together, you learn how to become the parents that your child needs.

Friday, January 20, 2017

Cleveland Clinic Day

When we go to the Cleveland Clinic, I usually schedule all his specialist on the same day. It makes for a long day by it's worth it. With a 2hr drive it's nice to not have to come all the time. 
Noah first appointment was to get his teeth clean. He gets a dose of Valium to help calm him a bit. It helps but it still takes Scott and I to hold down so he can get his teeth cleaned. He is small and mighty. It may not look like it but he is very strong. Good news he didn't have any cavities.
He then had an appointment with his audiologist. It didn't go very well because he was still laid  back because of the Valium and his wrestling match he just had. They need to him to be able to respond to sound and voices to see how well his implant is working. We need to make sure to schedule the audiologist appointment first next time. I did mention while at this appointment that Noah's ear was bleeding a few days before the appointment, so they sent us over to see the ENT to then find out that he had an ear infection. He has been on antibiotic drops and goes back on Feb. 27th to get it rechecked.
Noah's next appointment was with his gastroenterologist. This the appt. that I always fret over because it's the one that they always are on me about his size, weight and what I feed him. Over the last couple of years it had gotten better and they are trusting me more. I have fought and worked so hard for every pound Noah has gained. At times it has felt like all I do is make food and feed Noah. But, it sure has paid off. It the last 6 months Noah has gained over 8 lbs. Yes you read that right.....Noah now weighs 78lbs 11oz. and 4ft. 9in tall. The best of that is they feel Noah is just the right size and looks really healthy. The hard part is now that want him to maintain. How do I do that? For the last 19 years of have work so hard for him to gain weight. Getting him to maintain weight is a whole new concept for me.
The best part of our day was eating lunch with our good friend Pastor Steve. It was good to talk and catch up. After lunch we had to see Noah's nutritionist and discuss how many calories he should have now. We were told 2000. I sure hope I can do what I need to do and keep Noah from losing weight.
We then had to get Noah's blood drawn for some test to make sure his body is getting the nutrition he needs and some other things. We did find out that his liver enzymes were off and have to have it rechecked. I sure hope it's because of his ear infection and not something else.
Noah's last appointment was with his pulmonologist.  Something that was said while looking at Noah's lungs from PICU stay last fall was that the doctor said he could see the affects of second hand smoke. Really?  We go out of our way to keep Noah away from second hand smoke. So, we aren't real sure how to take that.... I guess we will continue to keep him away from smoke the best we can. He really  isn't around smokers that much.  Besides putting him a bubble I don't know what more we can do.