Wednesday, October 19, 2016

Days Like These....

This last month has been... It's just been hard. I've felt beaten down with worry about Noah, dealing with insurance, trying to find a DME company that well work with me to get Noah Real Food and being dropped by our DME company we have dealt with for the last almost 14 years. Yes you read that right. they dropped us without warning because that don't want to mess with ordering Noah's supplies for us anymore. So it's been 3 weeks since I've gotten what I need for Noah. I waited a week and called an asked where our shipment was because it usually only takes 2 days. I was told that it got cancelled because I was trying to get the Real Food Blends through them and they didn't want to deal with that. I asked to talk to a manager and I'm still waiting for that phone call....
I'm still in the process of getting all of Noah's supplies through another DME company. That means getting all his doctors to send scripts for everything we usually order. I just hope I get everything we need soon before we run out.  I jsut got the word that the new company can't get the Real Food Blends for me either. Insurance will pay for it, I just don't get it. With Noah sick again, it just adds to all the stress. I'm just at my breaking point. I need something to give. I just to curl up in a ball and cry.... Life isn't suppose to be this hard. I need some time away where I can relax and not think about all this crap.  Does anyone have a place on the beach I can use? HAHA wouldn't that be nice......
When I look at Noah and I see that sweet smile, it makes all worth it though.
I also couldn't do it without Scott. He's my rock. 

Sunday, October 16, 2016

Cancer Sucks!!!

Saying goodbye......

 Please click the link above for a tribute to one of our ABR trainers Fehim.


One of our trainers from ABR lost his battle with cancer. Fehim always had a smile on his face and truly loved the kids he worked with. He rejoiced with us with every inchstone in Noah's ABR journey.  Because in the special needs world we count inchstones not milestones. Fehim you will never be forgotten. The world isn't the same without you. Rest in Peace... Until we meet again....

Friday, October 7, 2016

Minerva Monster Day

Scott enjoyed sharing his love of Bigfoot with Noah. Scott has always said its not what I can't do with my son, it's what I can.

Saturday, October 1, 2016

Noah's Guardians

On Thursday Sept. 22nd. we became Noah's guardian's. We were just glad that Noah was home from the hospital and we didn't have to leave him in Cleveland. Thank you Scott for sticking by me through it all. We make a pretty good team.

Saturday, September 24, 2016

The Scariest Day

After getting home from the Indians game I tucked Noah into bed around 1:30. I also went to bed and made sure the Noah monitor by our bed was working and went to sleep. In the morning after not hearing Noah through out the night or morning, I thought he was sleeping in. How very wrong I was.... he was awake but he didn't look very good. He was just laying in his bed awake but not moving. I could feel the heat coming off of him. When I checked his temperature it was 107.5 and he looked almost grey.  I'm surprised how calm I was at the moment. I first tried to give him a shower to bring down his temp. It made little difference. I then got him dressed and put him in the van a rushed to the hospital. Thank goodness we only live 2 minutes away.
Ohio Health Shelby Hospital did a wonderful job getting Noah stabilized. That day was by far the scariest and hardest day of our lives.
Cleveland Clinic life flight did a great job keeping Noah comfortable during our flight to Cleveland.
If you look closely you can see our house to the left of the silos.
It was a quick a trip to Cleveland. It actually didn't feel like we were moving.
Taking off, flying and landing took 25 minutes.

It was so good to see Noah resting comfortably.
I remember trying to fall asleep on the makeshift bed on the window sill and hearing several life flights landing and listening to another Mom sobbing in the room next to us. She was living my nightmare. Her sweet little child didn't make it through the night. I pray that she has found peace.
Through all of what we were going through the one thing that kept us going was our friends and family. There were many prayers going up for us and Noah and we felt everyone of them.It was an awesome feeling to have so many Earth Angels lifting us up in prayer and we thank you from the bottom of our hearts. It couldn't have done it without you.

I was so amazed that our child that was life flighted on Saturday was going home on Monday. In fact it scared me. Was he really ready to go home? Would I be able to take care of him and keep him on the road to recovery? But, because he didn't have a fever, wasn't needing oxygen and his belly was tolerating him eating they felt he was ready to go home.
It was taking forever for us to get our walking papers, ( Doesn't it always?) so Noah and I went to check out the aquarium.
Noah was very tired but we were so glad to be home.

When we got home we were still being blessed by some Earth Angels. From receiving flowers to having supper delivered to our door. In fact with all the leftovers I didn't have to worry about supper the whole week. It was so nice to have all my energy to focus on getting Noah  feeling 100% better. 
Thank you to all our Earth Angels during this time. We couldn't have done it without you.

I think Bela was happy to have Noah home too.

Saturday, September 17, 2016

The Fun Before the Storm

We were so excited when Noah felt well enough to go to the Indians game.
It was a great night spent with family.
And a beautiful night for baseball.

Noah was very happy that the Indians won.
Ketchup stopped by to see Noah. Looks like Noah was trying to get a taste of some ketchup, I'll have to make sure I let him have a taste soon.

Friday, September 9, 2016

Labor Day Weekend 2016

Our family had a great Labor Day weekend. We played some bad-mitten.
We try our best to make sure Noah is involved with everything we do.

Issiah enjoys helping Noah.

I love how his little cousins stop by for a little hug. It always makes Noah's day and puts a smile on his face.

Don't let the face foul you, he loved every minute of it.