To Go or Not to Go

I love to get out of the house. Heck, I'm a stay at home Mom to a special needs child (teenager). I get a little stir crazy and I'm sure Noah does too. But, most days I think about how many times I have to pick up Noah to get from point A to point B. That doesn't even include lifting his chair in and out of the van. More often than not I choose to just stay home. Sometimes Scott or I will stay with Noah and the rest of us will go.  How I would love to go as a family.......

How I would love to get one of these.....

  But, there is no way we will ever be able to afford one. But, I recently came across this website...... Answered prayers? I hope so....... I was wondering if there was anyone out there that could take this and go with it?  I'm feeling a bit overwhelmed with life and could really use some help.  Any takers?

Grab it....

Do you see that little Batman in Noah's hand?
Watch what happens when we raised his hand.......



He closed his hand and didn't drop it.

Sometimes the little things seem so big.

A Day at the Cleveland Clinic

 On Tuesday Noah had 3appts at the Cleveland Clinic. Noah is 4ft 4in. and weighs 57.8lbs. After his doctors looked at his stats. she said you've got 6 weeks. I'm thinking, then what?  I don't care what they say...We are NOT giving Noah formula only!! Like that will help anyway. Geesh!!! After  looking at Noah without his shirt, her reply was "Are we sure they weighed him right?"  "Yes, I know they weighed him right because he actually gained 1.8lbs in the last month. Oh. ok....he still needs to gain some more weight. Hhmmm, last time he was too fat.  I think these doctors need to realize Noah is always going to be small and forget what the scales and charts say a boy his age should weigh.  He is a very healthy 14 year old that is only 4ft 4in and only weighs 57.8lbs. Get over yourselves. Thanks!!!!

Old Photo Friday

A fun day sledding.

This was Noah's first time sledding about 3 yrs ago.

Look What Noah Can Do

 Just recenley Noah has learned how to get on the floor safely.

Good Job Noah!!!!

Happy Birthday Noah/Old Photo Friday

Noah was born Jan 28th 1998 5lbs 14oz.

Noah decided to come 2 weeks early we had no idea there was anything wrong with him at this time.

Although we have since found out that Noah's fingers  and toes were still blue after 10min. at birth and no oxygen was given to him at that time.  We believe because of this he has CP.

1 month old

 Noah was such a good baby. He would hardly ever cry. He did have problems with eating. I would feed him for a hour. ( He would eat 2oz.) and we would sleep an hour. We did this for months.

6 months

At 4m old he had hernia surgery and weighed 9lbs. At this time we took him to see a endocrinologist to see if there was a reason he was having trouble gaining weight. They tested him for Parader Willie. They found nothing.

1 year old

 At one year old Noah weighed 12 lbs and still could not sit or hold his own head.

18 months

When Noah was 15 months old he was diagnosed with Trisomy 8. That was the hardest day. With this diagnosis we found out that there is whole list of things that should be wrong with Noah. Such as, no knee caps, deep set eyes, full lips and there are many others.  Noah has none of these.  His main problem is his CP.

3 years

When Noah was 3 years old he had surgery to correct his eyes and he had his second surgery for tubes in his ears.

 Noah  got his wheelchair when he was 3.

He also started preschool.

5 yrs

 Noah had his G-tube put in when he was 5yrs old. Besides tasting things Noah is still fed mostly by his G-Tube using a blenderized diet.

9yrs

 When Noah was 8 years we were able to provide HBOT for him.

Right before Noah turned 10 years old we started  ABR. By far the best thing we ever did for Noah.

Noah you are a true blessing in our family. None of us would be the same without you.

Happy birthday, Noah!!!!!!

We love you.

I'm Your Biggest Fan

 Noah loves going to the basketball games and getting high fives from the players.

 It means a lot to us that the boys take the time to make Noah feel  just like

 any other kid at the game.

 He absolutely loves getting high fives from all the players.

This what the boys see after they give Noah his high five,

I hope they realize how much Noah loves it.

He may sit quietly in the corner of the gym during the game but, he still is your #1 Fan.

Thanks boys for putting a smile on Noah's face and making him feel just like all the other kids on the court.