Please keep this little guy and us in your prayers tomorrow. Our whole family's anxiety is off the charts after almost losing him in April.
Tuesday, December 11, 2018
Saturday, September 15, 2018
Noah also won one of their raffles. Too bad he isn't old enough to enjoy it. Time for some wine tasting ; )
Tuesday, September 11, 2018
Yesterday Noah had an appointment with his ENT. Only half of Noah's electrodes in his cochlear implant are working. That might explain why Noah has been taking his "ear" off. It must not be sounding right to him. Maybe it hurts? Who knows...` The Cochlear Implant team feel that it has gone bad because of Noah banging his head on his headrest. Something that he does when he gets stressed out or anxious. Noah has been on anxiety medicine since May and it has done wonders for him. Boris has also played a big part in keeping Noah calm during his day and when he goes to his many appointments. With that being said it is time to replace his implant. The surgery will take place as soon as it can be scheduled.
Saturday, September 8, 2018
Noah saw his pulmonologist on Friday. She was very pleased with the way Noah's lungs sound. She feels the changes we have made in the last few months have been doing its job. We also talked about what to do to keep Noah healthy through the fall and winter. Noah was diagnosed with rhinovirus when he last in the hospital. With that being said, what is the next few months going to be like? It seems like the germs are ramped up already this year. We need to keep Noah away from germs as best we can and we are asking you to help us. It wouldn't be fair to Noah to completely put him in a bubble and not get out of the house to do things he loves to do. Here is where you can help: if you see us at church, a sporting event or anywhere else enjoying life, please don't hesitate to say hi to Noah but please don't touch him. If you aren't feeling well please refrain from stopping by or getting too close to Noah. Help Us Help Noah
Monday, August 20, 2018
By the way Liam was the best helper at Uncle Noah's appointment today.
When we got home I called Noah's nutritionist to discuss Noah's food intake. We both agreed that it was time to just have Noah maintain his weight since his BMI is now on the good range. It's hard to believe we have finally made it to the other side with Noah's weight.
Friday, August 17, 2018
Noah's appointment with his pulmonologist went really well. We got his breathing medications changed to inhalers. Noah doesn't do well with getting them through his nebulizer. The inhalers will be so much easier. Noah is also at his all time high of 77lbs 13.2oz.
Noah was so glad the Indians won 2-1.