The Benefit was a Success

Noah was a little out of sorts on Sunday during the benefit. He is such a creature of habit that anything out of the ordinary sets him off. He did although enjoy seeing everyone.


Jackie Davies (the one in the middle) offered to take care of all the food. That was such a help. Thank you so much Jackie. Thanks for being one of Noah's earth angels.

Morgan, Jackie, Linda, Gaye and Gail (Mom Dahn) did a great job singing.

Paul, Dave and Scott did a great job playing the music. Scott sang He's My Son. Always a tear jerker.

This is kinda dark but even little McCray played his guitar.

Morgan and her friend Ashlee.

Abby and Emily...thanks for taking care of the silent auction. You did a great job.

Debbie, Sandy, Maddie and Mom. Maddie ate so many black olives, I'm sure she was going to burst.

Aunt Janet, Mom Sheaffer, Tara and Paul enjoying the music.

Susan and her Mom came, it was good to see them.

I'm so glad my cousins Kim and Doug Klotz came it was so good to see them.

Noah's teacher Mrs. McClish and her daughter Julie came as well.

My cousin LuAnn, Aunt Joanne and Uncle Louie surprised me as well. It was good to see them.

When the snow storm hit us this last weekend, I was almost certain that we wouldn't get a good turn out for the benefit. But, God provided and we raised enough money to attend our next training session in Chicago. We leave a week from tomorrow. We're so excited to be able to learn our new exercises. Thanks for everyone that has helped us. Whether it was by prayers, donations or time. Thank you so much!!!!!!!

A Benefit for Noah

Februrary 7th 2010

2-4pm

First Lutheran Church

33 Broadway

Shelby, Ohio 44875

Food, Music and Silent Auction

We would love to be able to take Noah to Chicago on Feb 18th for our next ABR training.

The Sheaffers

A Punch in the stomach

Shortly after Noah got home from the hospital I came across a website that calculated the life expectancy of a special needs children. Noah is a in the 5th Group. The 5th group is a child who doesn't walk,crawl, creep or scoot and doesn't feed himself and is fed by a G-tube. Noah life expectancy according to this chart is 7-14yrs. Did you hear that? 7-14yrs!!!!!!! I felt like I was punched in the stomach. Noah is going to be 12 the 28th of this month....... I feel like I'm running out of time with him. With Noah just getting out of the hospital for pneumonia (first time ever)
I was wondering if this was going to be a start of a new trend with him. Having to be in the hospital every time he gets sick. It scares me to death. I'm not ready to let him go yet. I'm tears again just thinking about it. I fell so helpless. That's why I'm desperately trying to find something to help Noah. Scott and I really feel ABR is our answer. The weekend Noah was in the hospital was the time we were to be in Chicago for our ABR training. Unfortunately even if Noah was well enough to go we wouldn't had gone anyway. Because we just didn't have the money. The next time we can go is February 18th. How I wish we could were able to go. I keep saying that if this is what God wants it will happen. I'm hoping to have a small benefit for Noah on Sunday Feb. 7th.

This is the ABR machine we would love to be able to afford. Noah could do therapy all night long and be able to make faster progress. I'm still working on trying to get a grant to help us out. Why does things have to be so hard? I just want to be able to provide a better quality of life for Noah. Now I feel like I'm also trying to save his life as well. I've said this before..... why doesn't special needs children come with the means to be able to provide for them?

Gavin (ABR trainer) and Noah in Montreal.

I pray that 2010 will be a better year for us.

Noah loves a therapy that he can fall asleep

and he still gets stronger

I'm not ready to let this smile go.


Susan

AUGUST 02, 2008

First of all sorry about not posting earlier. The last month has been very busy here. The girls have gone to church camp, having been working on their 4-H projects and band camp has now started as well.
Noah is doing very well. We went to the Cleveland Clinic yesterday to see the ENT doctor. He will have surgery in about 2wks for ear tubes. I just hope it's before school starts.
On Tuesday the 5th our friend Don Reese is coming to Shelby to do a comedy benifit for Noah. It's going to be great seeing Don again. He is such a great friend.
The Sheaffers