Sunday, July 28, 2013

The Other Noah

I remember when I was pregnant with Noah and how even then I knew something wasn't quite right. I can't tell you what but I felt it. When he was born we were very excited that we had a little baby boy to love. His two big sisters adored him. But, the struggles for Noah started right away. He was having trouble with sucking and took and hour to drink 2oz. of formula. We spent the first several months of his life eating an hour and sleeping an hour 24 hours a day, just to get enough food in him, even doing that he still wasn't growing much.
 When he was 6 months old he only weighed 9lbs and still had no head control and that's when all the test began. We saw an endocrinologist to find out why Noah wasn't growing. He found nothing........ This was the same time that we started taking Noah to therapy hoping that it would help with Noah's ability to do things. Thinking about it now reminds me how desperate I felt.  In my desperate mind I kept thinking if I worked hard enough with Noah he would be on track by his 1st birthday. He obviously didn't happen but the fight continued to make him stronger.  That then brought on  how guilty I felt for not having the time for our two little girls as much as I would like. They never once complained but I still always wish that things could have been different for them growing up.  Morgan and Emily I'm so sorry if I ever made you feel like you weren't loved and cherished while growing up. All three of my children are my world and I'm so proud of the people they have become.
When Noah was 15 months old he only weighed 12lbs. He still couldn't sit up. This was also when he was diagnosed with Trisomy 8. What a blow that was. I remember riding home from Columbus and
Scott and I didn't say one word to each other. It felt like someone was standing on my chest. It was so hard to even breath. I remember the doctor telling us that Noah was going to be a vegetable for the rest of his life and that we should put him in a institution. I would never do that to my beautiful baby boy. Yes, he may not be able to sit, talk, or even eat on his own but he is far from a vegetable. He has so much personality, you just have to take the time to get to know him.

A month after getting Noah's diagnosis, Scott was diagnosed with testicular cancer. I remember feeling that I couldn't handle one more thing. Sadly I chose to focus just on Noah and block out everything else. I wanted to do everything I could to make Noah stronger. To this day I regret and feel so bad that I wasn't there to support Scott. What a scary time it was for him. So, Scott when you are reading this know that I love you very much and I'm sorry I wasn't there for you the way I should have been.

Speaking of Scott, I'm glad he has stuck by me and feel very blessed to have him in my life. Having a special needs child is tough. Most marriages with special needs children don't last. We have had our ups and downs but, I'm happy to say that we will be married 25 years next April. I think it times for a second honeymoon to celebrate. If only we could afford something like that.......

I love Noah so much that it hurts to consider that there was ever another "Noah" out there that could have been mine. that could have been the easier road in life.  A life where he didn't have to fight every single day to do the most basic of things. Where everything came naturally. Where it all came without all the trips to the doctors and hours of therapy. It kills me to think of the what "ifs". I love the person that he is. I feel most people look at him sitting quietly in his chair, that he understands and feels nothing. 

 He knows more then people give him credit for and if they would just take the time to talk to him, they would get the biggest smile. Guaranteed

Sunday, July 21, 2013

Noah and The OSU Basketball Team


Noah got to get dressed in the OSU's therapy room.


Scott:   Ten of the roster of twelve players were there today, although now I can't think of who the two were who were absent. Matta wasn't there either (away on a recruiting trip). I would've loved the opportunity to speak to him for a little bit. What a fun time! The players were all easily approachable; they were having just as much (if not more) fun than all of us "regular" folks. It was basically just a free-for-all shoot-around. Eight baskets around a huge gymnasium (in the newly built portion of the Schottenstein Center). The facility is amazing. Got to walk out onto the floor of the big arena, although the basketball floor wasn't down. There had been a concert there a few days before and the whole place was in kind of a shambles. Aaron Craft went out of his way to make Noah feel comfortable. He was easy to talk to and was so accommodating to everyone. Lenzelle Smith is a real cut-up; something you don't see during a game on television. At the end of the day, all of the players signed balls for the kids. They also had a stack of OSU letterhead there so the Dads could have a memento of the occasion (mine is full of autographs now!). All in all, a great day! Go Bucks! O-H....!
I was amazed Aaron remembered Noah from last year. He even called him by name.
Every time we tried to take a picture of Noah with Aaron Craft, he wouldn't stop looking at him. (Kinda like when he gets his picture with Austin Rohde)
What a happy guy.
Emily was excited that she got to go too.

We got to watch the OSU Basketball Team play around for a bit.
After they got done playing Noah got a ball signed by all the players.

What a great day!!!!

Friday, July 19, 2013

Our COSI Trip

Noah was so ready to get out of the house and do something fun. It's been so hot here and he has been couped up in the house trying to keep cool.
Our van's air conditioning went out so we went with my niece Debbie. Thank goodness we had Noah's stroller. We could have never had been able to go without it. We were packed tight with Noah, 4 kids, a wheelchair and a double stroller.
Noah was looking at little concerned with the idea.
We were heading out of town and got as call from Morgan. She was wondering if we had room for one more. It was a bit ruff but, we made room.
Noah loved all the hands on activities.
He launched a hot air balloon.
Maddie had fun helping Noah.
Issiah on the tight rope unicycle.
Ethan had fun looking in the microscope.
Noah really enjoyed playing in the water fountain.

What a great day of fun.

Monday, July 8, 2013

Noah's ABR Comparison File

                    We just got   Noah's ABR Comparison File today.  Some of the pictures are of Noah when he first started ABR in 2008. Wow what a difference. Seeing this file makes me glad that we have stuck with it for so long. I know we still have a long way to go but, this gives me the push I need to keep on rolling and pumping.
Please download the file so you can see and compare. If you just look at the preview you won't be able to watch the actual comparison. You won't regret it. 
Noah broke his glasses. We just picked up his new ones. I hope his new pair last a bit longer than the last two.

Friday, July 5, 2013

Baseball Awards

 Tuesday brought an end to  baseball for this year.
 Noah had a blast playing. We'll definitely be back next year.

 Noah got some Pop Rocks, we thought we would give him some to see if he would like them.
Maybe not...........