Sunday, April 22, 2018

Bark Box

While Noah was in the hospital Boris came up to see him. I honestly believe that Boris helped Noah get better and may even saved his life.
Before Noah got out of the hospital he ordered Bark Box for Boris. It is a yearly subscription of toys and treats for dogs. What a great way to reward Boris for being a part of making Noah well.

Friday, April 20, 2018

We Have Never Been This Close

It has taken me four months to finally sit down and blog about Noah's last hospital stay. I have slowly made my way out of the worst funk I have ever been in. With Noah being life flighted in January, my Dad passing away and Noah getting so sick in April that we almost lost him. I had hit rock bottom and struggled to get out of bed every morning. I was determined to enjoy life again and have fun. I also wanted to give Noah a great summer enjoying life as well,like taking Noah to the ocean again. Thanks Kim and Karen for helping me make that happen.

With all that being said I'm finally at a better place. I'm not 100% but I'm a lot closer then I was. Hopefully I can get through this blog post without any tears.....

Scott and I got home from our get away around 3am last Monday morning. I scooped up Noah. He was awake in his bed sideways and had rubbed his forehead raw. He was off the wall agitated and restless. After over a hour of trying to calm him down, I put him back in bed and laid beside him to try and get some rest.
On Wednesday Morgan had to return to work after her maternity leave and Liam came to our house. Isn't he just dreamy?
On Thursday I came to realize that I could no longer take care of Noah on my own. I took him to the ER.
They decided Noah needed to be life flighted again to Cleveland. They sent a smaller helicopter then before and I weighed 5lbs too much to be able to ride with Noah. I started to panic....
I then called Deanie Kehres and she sent Todd to the hospital to ride with Noah. What a relief it was to know Todd would be there to be Noah's voice and mine.

Watching them take off was so hard.....
I have never seen Noah so sick.....

Even FaceTime with Liam didn't make him smile.
Noah was having keeping his stats up so he was put on 15 liters on high flow oxygen.
Saturday night was his worst night. We were sure we were going to lose him. It was so hard watching his little body fight to breath.
Please God don't take him yet.......
For most of Noah's hospital stay Noah wanted me to stand beside him and hold his hand. My body was so tired and sore from standing but how could I not?
On Sunday everyone came to see him, even Boris. When Emily put Boris on Noah's lap he gave Noah a kiss and then walked all over his bed and then laid down beside Noah and fell asleep. It wasn't long before Noah was asleep too. The first time in days.....
I had a talk with Noah and told him he was the pilot and it was up to him to fight and get stronger.
He definitely listened..... he weaned himself off of the high flow by pulling it off.
Emily brought Boris again on Monday.
Noah was well enough for Boris to sit in his lap in his chair.

On Tuesday Noah was doing his best to get rid of the oxygen all together.

During rounds on Wednesday, the doctors decided that Noah would rest and heal better at home.

Noah and I were able to get out of his room and go to lunch while we waited on Scott to get off of work so he could come pick us up. Noah also went shopping in the gift shop. He picked out a turtle for Liam.
Come on Boris we are out of here......

Thursday, April 19, 2018

Good to be Home

It was so good to get home after being in the hospital for a week.
Noah has lost 20lbs. We are switching up what we feed him and hopefully he starts gaining weight soon.

Tuesday, April 17, 2018

A Second Honeymoon

Scott and I were able to get away together for the first since we were married.
Do have any idea what it takes for Scott and I to get away together?  We are very blessed to have people in our lives, so we can do just that.
They say it takes a village to raise a child, when you have special needs child it takes an Army of Earth Angels.
We had an amazing time together. We sure needed it. Especially with what we went home to.....
Words aren't enough for everyone that helped make our trip possible. We couldn't have done it without Steve Stine offering us a place to stay and it would have been impossible without the help of Emily, Todd and Deanie Kehres keeping Noah for us. I'm so sorry it wasn't the best time with Noah. Because of you three we were able to not worry (at least not as much). We guys rocked it. Thank so much and we love you. 

Monday, April 9, 2018

Happy Easter

Our first Easter without Dad was  sad and heartbreaking. Emotions were high and things really didn't go as well as they should have. I'm sure each holiday will get better as time goes on.

I just love this picture of Liam snuggled up in his Great Grandpa's sweater. My Dad would have loved to snuggle with him. Liam has got several guardian angels looking over him.

Thursday, April 5, 2018

Boris is Doing Great

Boris is doing a great job settling into what he needs to do for Noah.
He has even enjoyed a movie at the movie theater.
He has been finding his place on therapy table during ABR.

He even enjoys going to church with Noah.

He has been a great help through Noah's day throughout his life.