Saturday, October 26, 2013

Iron Springs Farm Field Trip

We had a fun time on Noah's field trip to Iron Springs Farm.
 We got to see a lot of different kind of animals and we even got to make a goat faint.

 Ethan loved the wagon ride.

It was a pretty cold day but, the scenery was beautiful.

   We had a really fun day.

Friday, October 18, 2013

It's Just Hard

 Being a special needs Mom (Dad, sibling, family ) is just hard. Not in the way some people think. Our life now has come second nature. Just like every thing else you do for awhile, it just is what it is. 

The hard part is how different it is from what it used to be. I miss those times. We can't just jump in the car and just go. We have to think about if where we are going, is it going to be handicap accessible?  Loading and unloading a heavy wheelchair and transferring Noah in and out of said wheelchair. In the past on many occasion we had to make the decision not to go somewhere and disappoint two little girls. Is too hot?, is too cold?, is it too wet? Or, sorry girls Noah is sick we won't be able to go today.

I have my good days and I have my bad days. Most of the time I can deal with everything in stride. Some days I let everything get to me and I sometimes feel I can't do it for one more day. I spend a lot of time alone taking care of Noah on a daily basis, while everyone else is at school or work. There isn't a lot of me time or even adult conversation. A few months back I went to my 30th high school reunion. It happened to be one of those times when I was feeling pretty down and was really needing some me time and adult conversation. I sat and listened to my former classmates go on about what seemed to me their perfect little lives. I walked home that night feeling more isolated and upset than I have ever been. While my former classmates were going on with their lives, I have spent my life trying to keep my son alive. Going to the countless doctors and therapy appointments over the years. My life is so much different....... It took a few days but, I bounced back and I came to realize that I'm very blessed to have family and friends that love and support me just the way I am.

Saturday, October 12, 2013

It's That Time Again

 Time to make our every 6 month evaluation video for ABR.
Things we noticed while making it:
1. Noah's head control is so much better.
2. While on his belly he can prop up on his elbows longer.
3. Noah can keep is legs into a tailor sit position. Six months ago it was impossible to keep his legs in tailor sitting position.
We travel to Montreal in a month for our next ABR training. Can't wait to see what they say about Noah's progress.

Saturday, October 5, 2013

This time of year......

 This time of year always gets me thinking about the what ifs...... As much as I try, I can't seem to shake it. It's the beginning of the school year and all the extra stuff the kids do. Like band, sports and dances at school. Its hard to believe Noah is going to 16 in just a few months. He still seems like a little boy to me. He should be practicing his driving skills and excited about getting his license. Would he be out on the field playing football,  being a basketball star on the court, or in the band raising money to go to Disney World in the spring? Who would his group of friends be? Who would of been his date to the Homecoming dance? The list goes on and on......
I'm just glad his little cousins think he is a really cool dude.