I've been really scattered-brained lately...... Forgetting why I walked in a room, putting a box of cereal in the freezer, making macaroni and cheese and I put the macaroni and the powder cheese together in the boiling water and bunch of other silly things. The day I thought I "lost" my keys put the icing on the cake. I was going to pick Morgan up from placement and was trying to find my keys. I looked everywhere.... I then went outside thinking maybe I left them in the ignition when I got home from picking up Noah from school. They were not only in the ignition but the van was still running. Mind you, the van has now ran for over 3hrs. What is wrong with me?
When you become a parent you look forward to all the first........ first smile, laugh, tooth, first time your child rolls over, sits up, first steps, first birthday. the list goes on and on. We have found ourselves looking at the opposite side of that lately. Morgan is a senior this year. We've watched her in her last the home game ( in the pouring down rain), the last parade she will be in the band, and the last halftime show. I'm know there are alot more last to come and I'm not looking forward to them at all. I know all parents go through this but, time goes so fast. I want my little girl back........
I have found myself really over whelmed lately....... I've been trying to get out in the morning while Noah is at school to exercise at the Y. I drop Noah off at school and then go the Y. When I'm done I go pick Noah up and take him home to start his therapy. Finding time to do all the house work is hard. There just doesn't seem like there is enough time in the day to get everything done.
On Friday I got news that a sweet 5yr old little boy that we had met in Cincinnati when we were doing HBOT had passed away. This news really threw me for a loop. I have struggled with this before and I find myself struggling with it again......... Why does God let children be born with disabilities? I know that this isn't the way to feel but right now I can't find any reason not too. I just don't understand...... I can't stop thinking about his family grieving his loss. They did everything they could to help him and nothing helped. It's just not fair. It got me thinking about Noah....... what if this was his last day on earth? Have I've done everything that I could do for him? Does he know that he is loved very much? Gosh I hate feeling this way.......
Sorry about the all over post but I had alot to get off my mind. Causing me not to sleep well, even with taking Tylenol PM's I hope this helps........
Susan
" YES"
When we got to the ER at the Cleveland Clinic around 5:30pm they took him back right away. I'm so glad because it was full of people holding vomit boxes. It was so hard watching them stick things up his nose to suction him out. One respiratory therapist I thought was just a bit rough with him. She was jamming it up his nose over and over again that both nostrils were bleeding. I was just waiting for her suck out his whole lung. We finally were taken to the ICU around 11pm. Noah hardly slept at all that night.
On Friday his doctors told me if Noah could get off the oxygen during the day and night he could go home. On Saturday they said the some thing and was told again that he needed to sit up more. I kept waiting for the nurses to come in and help I waited until about 12pm and decided that if no one else was going to get him out of bed so I preceded to do it myself. I was carefully getting him out of his bed with all his wires attached. When I felt someone watching me. I looked and there was this nurse (The same nurse that had a hard time getting Noah's blood pressure earlier that morning and yelled at Noah, "Noah I have places I need to be.") looking at me with utter disgust on her face. She pops her head in the door and ask me, "What are doing?" I told her that I was trying to get him up sitting in his chair like the doctors wanted. She said" Well his little hiney is sticking out." and then preceded to walk back out the door. Never even offering any help. I got him comfy on my lap and then I waited for a nurse to come and take him off his oxygen. After over a hour I decided just to do it myself. I figured if I didn't we would still be there waiting. I couldn't believe how much better he was after getting lots of loving. When I put him back in his bed he was all scooting all over it.
This is Noah getting a breathing and vest treatment after we got home on Sunday.
On Saturday we went to the Columbus Zoo for Boo at the Zoo. We met our friend Melody and Aunt Kim and Rachelle. It was a bit cold and damp but we still had a great time.
We saw flamingos.
Penguins
Tigers
Noah wasn't to sure about the birds on him. Before they were done one of them got his little finger. His little eyes bugged out of his head and he yelped. (Before he wouldn't have reacted at all.)
Noah and I got to ride in a police car. I was telling him here that it better be the last time I see him in a police car. He just laughed at me.
Noah and I also got to ride in a golf cart. This wasn't new to him but, he loved it any way.
Noah even got to pet a little puppy. I asked him if he wanted me to put him in his bookbag an he said "yes."
Morgan, Marshall, Chelsi and Sage
Morgan and Marshall
Morgan and Marshall
Abby, Ted and Emily
