Long Day at the Cleveland Clinic

Yesterday Noah had 4 appointments at the Cleveland Clinic. We left the house at 6:30am.

The first appt. was with his pulminologist. She was very pleased with how Noah looked and was very impressed that he has only gotten one cold this winter and fought it all on his own with no doctors visits. He doesn't have to go back until June. Our next appt. was with his gastrologist. He weighed 57lbs. 14oz. He hasn't gained any but, more importantly he hasn't lost any either. We actually went to see his gastrologist because since November we have been having problem with his g-tube sight. For last 10 years his g-tube sight has looked beautiful. They are always very impressed on how it looks. In November I changed his g-tube and noticed it was a bit tight. In 2 days it was very red and sore to the touch. I took it out and noticed that the part that goes down through his body into his stomach was 1/2 as long as it should be. I then put in a new one and have struggled with it ever since. One day his shirt was saturated with old blood and it continues to be sore looking and oozing goo. When his gastrologist looked at it she said, "To be honest compared to other g-tube sites his doesn't look that bad but, compared to what Noah's usually looks like I will give you a script for an antibiotic." Gosh I hope that is the answer. I hate that I haven't been able to get it to look better. Noah's next appointment was with Dr. Maholtra his ENT and the doctor that is heading up the Cochlear Implant evaluation for Noah. He feels that Noah is a good candidate for a Cochlear Implant and will need a Cat scan and a MRI to see if he is structurally sound to have a implant. They will be scheduled in the very near future. Noah also saw the 3 audiologist yesterday (They are also on the evaluation team.) to determine how much Noah is hearing with his hearing aides. They felt the same way we did, that Noah isn't responding to much to sound at all. I wonder if getting the implant will help? He deserves anything that will give him a better quality of life.

 We made it home in time to see the Shelby boys basketball team beat Galion.

Noah sitting at the game. What is he looking at you ask?

The boys warming up of course. One of the boys yelled out, "Noah"

They got one of his signature goofy grins.

Going to the game was a good way to end a very long day at the Cleveland Clinic.