Friday, April 20, 2018

We Have Never Been This Close



It has taken me four months to finally sit down and blog about Noah's last hospital stay. I have slowly made my way out of the worst funk I have ever been in. With Noah being life flighted in January, my Dad passing away and Noah getting so sick in April that we almost lost him. I had hit rock bottom and struggled to get out of bed every morning. I was determined to enjoy life again and have fun. I also wanted to give Noah a great summer enjoying life as well,like taking Noah to the ocean again. Thanks Kim and Karen for helping me make that happen.

With all that being said I'm finally at a better place. I'm not 100% but I'm a lot closer then I was. Hopefully I can get through this blog post without any tears.....




Scott and I got home from our get away around 3am last Monday morning. I scooped up Noah. He was awake in his bed sideways and had rubbed his forehead raw. He was off the wall agitated and restless. After over a hour of trying to calm him down, I put him back in bed and laid beside him to try and get some rest.
On Wednesday Morgan had to return to work after her maternity leave and Liam came to our house. Isn't he just dreamy?
On Thursday I came to realize that I could no longer take care of Noah on my own. I took him to the ER.
They decided Noah needed to be life flighted again to Cleveland. They sent a smaller helicopter then before and I weighed 5lbs too much to be able to ride with Noah. I started to panic....
I then called Deanie Kehres and she sent Todd to the hospital to ride with Noah. What a relief it was to know Todd would be there to be Noah's voice and mine.

Watching them take off was so hard.....
I have never seen Noah so sick.....


Even FaceTime with Liam didn't make him smile.
Noah was having keeping his stats up so he was put on 15 liters on high flow oxygen.
Saturday night was his worst night. We were sure we were going to lose him. It was so hard watching his little body fight to breath.
Please God don't take him yet.......
For most of Noah's hospital stay Noah wanted me to stand beside him and hold his hand. My body was so tired and sore from standing but how could I not?
On Sunday everyone came to see him, even Boris. When Emily put Boris on Noah's lap he gave Noah a kiss and then walked all over his bed and then laid down beside Noah and fell asleep. It wasn't long before Noah was asleep too. The first time in days.....
I had a talk with Noah and told him he was the pilot and it was up to him to fight and get stronger.
He definitely listened..... he weaned himself off of the high flow by pulling it off.
Emily brought Boris again on Monday.
Noah was well enough for Boris to sit in his lap in his chair.


On Tuesday Noah was doing his best to get rid of the oxygen all together.

During rounds on Wednesday, the doctors decided that Noah would rest and heal better at home.

Noah and I were able to get out of his room and go to lunch while we waited on Scott to get off of work so he could come pick us up. Noah also went shopping in the gift shop. He picked out a turtle for Liam.
 
Come on Boris we are out of here......

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