Cleveland Clinic/Willoughby

Our appointment with Noah's audiologist on Monday went really well.

I was telling Katie that Noah won't wear his ear to the food pantry on Wednesdays. She then added a program that scans the area Noah is in and blocks out the background noise. On Wednesday I was getting Noah ready to volunteer at the pantry. After I was put his ear on I reminded him that Katie had added the program and to give it a chance before he decides to take his ear off. I'm pleased and amazed that he didn't try to take it off. In fact he wore it all morning. Noah even interacted with everyone and even had a few smiles.

Our appointment at the audiologist consist of hooking Noah's implant up to a computer and checking to see how his brain is processing the sound. They make changes with the information they receive to make the implant work better for Noah.

Another Day Another Appoinment

Today Noah's appointment was with his gastroenterologist Dr. Kaplan and his nutritionist. This appointment always stresses me out. Over the years I have always done what I felt that was best for Noah, such as the blenderized diet rather then giving him the loaded done sugared formula. In the beginning they felt it was the worst thing I could do for him even though he was the healthiest he had ever been. Over time they have come around but in the process I have felt like I was under their thumb. Noah has been seen every six months and had to have blood work done every time to see what his nutrtion levels were. Every time his numbers got better and better.

He is doing so well that finally they are confident enough in me that they don't want to see him again until a year. It has taken 6 years maybe more I can't remember.... I can feel like I can breath.... We were told Noah is most likely done growing and the main goal now is to keep him stable.

Forever our peanut at 71lbs and 4ft. 9 1/4in. tall.

 

Bindi has been working on be down and staying while off of Noah's lap. She doesn't look  happy about it but has been doing much better.

A Day at the Cleveland Clinic

Noah had a check up with his pulmonologist Dr. Royce. Noah got a lung X-ray after a good report. He sounded so good right now that Doctor Royce wanted a new baseline X-ray.

After our appointment we went to lunch at the Great Northern Mall. I have to make note here how much  I love their changing stations in the bathroom. They are so handicap accessible. No need to to change Noah on the floor. I wish more places were just as accessible.

 

After lunch we went to see the movie 49 Meters Down. It was fun to go to a movie today but I don't think either one of us enjoyed it much.