"We thought we'd have to teach our son about the world. Turns out we have to teach the world about our son. They see a boy who cannot speak. We see a miracle who doesn't need words." -unknown
Thursday, March 19, 2009
Noah's story
This blog has been created to keep friends and family updated on Noahs progressand the rest of the family.Noah was born on January 28th 1998. He was born at 38 wks. 5lbs 14oz. and 18 in. long. When he was born he was within the uterian sack. His fingers and toes were blue after 5 minutes. We brought him home after only a 2 day stay. He had a hard time sucking. He would suck on a bottle for an hour and got a ounce of food. So I would feed him for a hour and we would sleep a hour. 24/7 for months. At 4months he had hernia surgery. When Noah was 6 months old we took him to a endocronologist because he only weighed 9lbs. He also didn't have any head contol yet. They tested him for Prader Willi and Cystic Fibrosis and a ray of other things. They found nothing. It wasn't until Noah was 15 months old that we found out that he had Trisomy 8. What horrible blow that was. Since then he has also been diagnosed with Cerebal Palsy. Scott and I have always said that if there was something out there that could give Noah a better quality of life we would do our best to provide it for him. Over the last year many people have helped us provide Hyperbaric Oxygen Therapy for Noah. With that we are very grateful to everyone that has helped us out. We have seen alot of little changes in Noah.
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Noah's story
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