Senior Band Night

On Oct 16th it was Senior Band Night. It was the last home game we saw Morgan on the football field as Shelby Band Member. She has always loved band. We've watched her grow up and mature with the help of band. She started out playing the flute in 6th grade. She played

flute her freshman year in the marching band. Then she started playing the bassoon during concert season in Symphonic Band. Her sophomore year she made the flag corp for marching band. This year she earned the right to be squad leader for the flag corp. Scott and I are so proud of her. She has turned out be to such a beautiful person inside and out.

Mrs. Baker, Mr. Day and Mr. Mayer are the best band directors anyone could ask for. They really care about the kids as if they were their own. They've been a great influence in Morgan's life. Thank You for all you do.

It was a cold and wet miserable night but she gave it her all.

We love you Morgan!!!!

The Sheaffers

Happy Halloween

I know this is late.... but, we've been really busy around here with Noah being in the hospital and now all 3 kids have play practice almost every night.

Noah was Batman for Halloween this year. Scott and I made his costume last year before
we went to Canada for ABR. On the way we stopped at a comic book show. Adam West was there and Noah wore his Batman outfit and sat in the Batmobile. We missed Halloween last year so we decided Noah could be Batman again. We don't take him trick-or-treating. He doesn't eat the candy and I definitely don't need it. Plus it's usually to cold and ucky out for Noah to be out to long. We dressed him up and took him up the street for the parade.

Tomorrow I'm hoping to post about Senior Band Night.

Susan

The Answer is.....

" YES"

(a long blink is a yes)

When I picked Noah up from school today (first day back after being gone for almost 2wks.) I asked him if he had fun at school and he gave me his answer.

I'm pretty excited...... Dec. 3rd,4th,5th and 6th Morgan, Emily and Noah are going to be in the play Suessical Jr. Morgan is playing Mrs Mayor and Emily and Noah are going to be Who's. I can't wait to see all 3 kids in a play together.

Thanks for checking in.....

The Sheaffers

I need to learn to keep my mouth shut

I think I learned my lesson.... I need to keep my mouth shut and not brag on how good Noah is doing. Last Monday at Noah's IEP meeting I was going on and on about how good Noah was doing. He was working through his second cold with no antibiotic. Then on Wednesday I went to go pick Noah up from school. As soon as I walked into his room I knew he wasn't feeling well. He just had that "look" Although I had no idea he was as sick as he was. It hit him so differently this time. I hope this isn't a start of him having to be hospitalized when he gets sick.



When we got to the doctor office they checked Noah's pulse ox and it was 85. The nurse then gave him a breathing treatment an then preceded to take his pulse ox again and it was still 85. At that point they gave him rocefin shots(antibiotic) and a steroid shot. After that I was told to take Noah to the Cleveland Clinic because that was where his specialist are.

When we got to the ER at the Cleveland Clinic around 5:30pm they took him back right away. I'm so glad because it was full of people holding vomit boxes. It was so hard watching them stick things up his nose to suction him out. One respiratory therapist I thought was just a bit rough with him. She was jamming it up his nose over and over again that both nostrils were bleeding. I was just waiting for her suck out his whole lung. We finally were taken to the ICU around 11pm. Noah hardly slept at all that night.


On Thursday they moved him to the regular floor and started weaning from the oxygen. We started at 4 liters.

On Friday his doctors told me if Noah could get off the oxygen during the day and night he could go home. On Saturday they said the some thing and was told again that he needed to sit up more. I kept waiting for the nurses to come in and help I waited until about 12pm and decided that if no one else was going to get him out of bed so I preceded to do it myself. I was carefully getting him out of his bed with all his wires attached. When I felt someone watching me. I looked and there was this nurse (The same nurse that had a hard time getting Noah's blood pressure earlier that morning and yelled at Noah, "Noah I have places I need to be.") looking at me with utter disgust on her face. She pops her head in the door and ask me, "What are doing?" I told her that I was trying to get him up sitting in his chair like the doctors wanted. She said" Well his little hiney is sticking out." and then preceded to walk back out the door. Never even offering any help. I got him comfy on my lap and then I waited for a nurse to come and take him off his oxygen. After over a hour I decided just to do it myself. I figured if I didn't we would still be there waiting. I couldn't believe how much better he was after getting lots of loving. When I put him back in his bed he was all scooting all over it.

We were finally released on Sunday at 12pm.

This is Noah getting a breathing and vest treatment after we got home on Sunday.

This is what Noah gave me for my birthday today.

I love his smiles.

Thank for all the prayers on Noah's behalf.

The Sheaffers

Scatteredbrained........ and other ramblings.

I've been really scattered-brained lately...... Forgetting why I walked in a room, putting a box of cereal in the freezer, making macaroni and cheese and I put the macaroni and the powder cheese together in the boiling water and bunch of other silly things. The day I thought I "lost" my keys put the icing on the cake. I was going to pick Morgan up from placement and was trying to find my keys. I looked everywhere.... I then went outside thinking maybe I left them in the ignition when I got home from picking up Noah from school. They were not only in the ignition but the van was still running. Mind you, the van has now ran for over 3hrs. What is wrong with me?

When you become a parent you look forward to all the first........ first smile, laugh, tooth, first time your child rolls over, sits up, first steps, first birthday. the list goes on and on. We have found ourselves looking at the opposite side of that lately. Morgan is a senior this year. We've watched her in her last the home game ( in the pouring down rain), the last parade she will be in the band, and the last halftime show. I'm know there are alot more last to come and I'm not looking forward to them at all. I know all parents go through this but, time goes so fast. I want my little girl back........

I have found myself really over whelmed lately....... I've been trying to get out in the morning while Noah is at school to exercise at the Y. I drop Noah off at school and then go the Y. When I'm done I go pick Noah up and take him home to start his therapy. Finding time to do all the house work is hard. There just doesn't seem like there is enough time in the day to get everything done.

On Friday I got news that a sweet 5yr old little boy that we had met in Cincinnati when we were doing HBOT had passed away. This news really threw me for a loop. I have struggled with this before and I find myself struggling with it again......... Why does God let children be born with disabilities? I know that this isn't the way to feel but right now I can't find any reason not too. I just don't understand...... I can't stop thinking about his family grieving his loss. They did everything they could to help him and nothing helped. It's just not fair. It got me thinking about Noah....... what if this was his last day on earth? Have I've done everything that I could do for him? Does he know that he is loved very much? Gosh I hate feeling this way.......


Sorry about the all over post but I had alot to get off my mind. Causing me not to sleep well, even with taking Tylenol PM's I hope this helps........

Susan