Plumonary Checkup

Noah's checkup with his pulmonologist went really well.  The only issue we are dealing with is Noah has once again lost weight. His little body was working so hard to breath that he burned off more calories than he was taking in while he was sick last month. We have made some changes and hopefully he will gain the weight back as quickly as it came off.   

I love how attentive Boris is when Noah is at his appointments. Boris will lick Noah's hands to distract him when the nurses or doctors are accessing him. For the first time Noah was able to have some blood drawn with out having 2 people hold his arm. I'm so glad we have Boris to be there for Noah.

A Day at the Park

 Noah had a great day at the park. I'm so excited to see swings that Noah can swing in right along side of his friends.

 What a fun day we had playing with Liam. 

The cutest service dog ever!!!!

 The park even has a swing for Mommy and baby.

Liam says, "Done"

Little Buckeye Museum

We had a fun day exploring the Little Buckeye Museum with Liam and Morgan.

Noah really enjoyed watching Liam play and explore.

Liam and Noah had fun putting on a show and dancing for Morgan and I.

Last minute playtime with Mr. Potato head before we were done for the day.

Finally A New Chair

 After a 2 year fight for a new wheelchair, Noah got discharged from the hospital at 2pm on Friday and we headed to Millers because we weren't leaving Cleveland without his new chair!!!

They sat Noah in his new chair and figured out what needed to be changed and tweaked to fit him better. 

 Noah was able to take a quick break while he waited for them to make changes.

 Then back in his chair to make the final adjustments.

The physical therapist that worked with us noticed how much better he sat up from the last time she saw him. I told her again that we do ABR. Thanks ABR,  Noah wouldn't be where he is without you. 

 We are happy to say, it's the best chair he has ever had.

Our Healthy Streak Ended

 On Monday Noah had been sick for about a week and I decided it was time to get him checked out. Instead of calling his pediatrician I made an appointment with his pulmonologist. On Wednesday my Mom, Liam, Noah and I headed to Twinsburg to see Dr. Hart.

 I thought it would be a quick check in with the doctor and get some antibiotic and be on our way. Unfortunately, his chest was retracting and his pulse ox was 86. 

 This little guy was the best baby. He was well taken care of the nurses. One even made him some macaroni and cheese for his lunch.

 Liam had fun and occupied himself with anything he could find.

 It was so hard but I sent Noah in the ambulance by himself and met him at the Main campus.

I think Liam was  calling his Mom and telling her to come quick he was running out of things to do in Uncle Noah's room. 

 Grandma, my Mom just told me that I have another 3 hours in this place...….

Finally after taking a walk to see the fish, Mommy and Daddy came to get me.

 After a night of breathing treatments, steroids and antibiotics, Noah had gotten a little bit of rest and doing so much better. Goal of the for the day was to get out of the ICU and move to a regular room, and continue to improve so he could be discharged on Friday.

 I think he is saying, Get me out of here!!!!

 He is such a Goober. It was determined through blood work that Noah had Parainfluenza 3. Yeah I  have never heard of this one either. He started at 15L. of oxygen and worked himself down to 1 liter by Thursday morning. 

By Thursday evening Noah had weaned himself of oxygen and continued to stat at 95 all night.

His biggest problem while being in the hospital is being able to rest for any amount of time. When the doctors were doing their rounds on Friday I convinced them that Noah would rest and heal better at home. They weren't doing anything for Noah that I couldn't do at home, so they discharged him.