tag:blogger.com,1999:blog-2775833811713241229.post7916970225267158097..comments2023-07-10T05:29:32.565-04:00Comments on Our Journey With One of God's Miracles: Its Good to be HomeSusanhttp://www.blogger.com/profile/11467411170536465859noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-2775833811713241229.post-73991157591010202882012-03-14T15:53:19.358-04:002012-03-14T15:53:19.358-04:00The other commenter is right. Her looks great. My ...The other commenter is right. Her looks great. My Noah's GI dr says that trisomy 8 kids are tiny for a reason. We dont know that reason but obviously God made them that way. What if we did something to make him get bigger and something happened to another area of his body? I cant wait to hear how the appointment went. He was sick in the hospital and has trisomy 8 thats why his weight is what it is..thats what I would tell them. If they dont like it oh well.<br /><br />BE blessed<br />AshleeLinneahttps://www.blogger.com/profile/15333442830705285496noreply@blogger.comtag:blogger.com,1999:blog-2775833811713241229.post-17912473961028993172012-03-14T10:53:14.518-04:002012-03-14T10:53:14.518-04:00You know, Sue, whenever you post pictures of Noah ...You know, Sue, whenever you post pictures of Noah he looks great and healthy...his face shows no signs of lacking anything and I imagine that given the fact he is never/rarely in the hospital, his care is great.<br /> Now I have seen emaciated kids and skinny kids like my Adam. His spasticity burns up more calories than we put in; so he's skinny, but healthy. Noah looks great and the fact that he rebounded from his latest illness so quickly is a testament to his outstanding care...don't worry about doctors! I'm sure that if the hospital thought something was awry they would have mentioned it. <br /> It's ok, what would the doctors have you do, pump him with 5 high calorie avacados each day and add another 1500 calories...our kids cannot be defined by growth charts in the doctor's office.Phil Dzialohttps://www.blogger.com/profile/04150881545903849250noreply@blogger.com